update
In case you're still with me here and wondering how all of this is playing out . . . .
I finished proton therapy on May 23. I did decide to ring the bell - for lots of reasons, none of them the ones I thought they'd be - but good reasons nonetheless.
I'm still swaddled in Saran Wrap - well not totally - and not Saran Wrap - fancy Saran Wrap - medical Saran Wrap called Mepitel. It's supposed to keep my skin from burning, even three weeks after treatment. It doesn't look like it did its' job, but I'd hate to see what would've happened without it - because the upper quadrant of my torso is giving baked potato - the red skinned ones. But at least my skin isn't falling off in layers which was apparently a possibility, sooo that's great.
I finished choreographing the middle school pops concert during treatment, spring recital for my dance kids, and am working on our big Summer SLAM camps right now. Neeks finished freshman year, Kaia finished her first year of grad school and is helping to run a clinic in Baltimore, and Noah just wrapped up year 3 of teaching.
More injections coming in June, Lots of meds forever and ever. Heart surgery put on indefinite hold.
I'm insanely tired with all of the radiation in my system, but that's getting better.
I'm craving an adventure - but not another one like this.
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