Friday, May 27, 2016

quick update

Rico's surgery date was moved.

Not sure if we should be happy or furious about this.

On the up side - it's no longer on Punk's birthday.

On the downside, we've meticulously planned our lives around this date for two months, and aren't quite sure how to juggle everything at this point.

It'll all be good.

June 10.

Wednesday, May 25, 2016

beautiful

Sometimes life gets tricky.
And when it does, I have to just stop and think about the beautiful things.
These are some of them:

Academic high honors for Kooka - straight A's all through middle school, plus her girl's acapella performance.





Punk's gallery show for art:




Yoda winning the Harry Potter Trivia contest in the park:

Punk getting to film a retro 50's commercial. 



Rico getting to read to the kindergarten class:

Those things were good. This one - this thing that looks like you'll get a power-up or an extra life if you eat it - not so good:
So if you find yourself at the store saying, "It's fruit, how bad can it be?" We've saved you the trouble - the answer is "quite bad." You're welcome.








Monday, May 23, 2016

real

Today is our real-a-versary.

Five years ago, we were married in United Hospital next to my grandma who insisted we hurry it up so she could make it.

Next week is what we call our anniversary - it's when we planned our wedding - when we had our party. So we'll celebrate then.
Or maybe not.


"Hey - happy anniversary Rico. Five years."
"That's ALL?!"
"What?"
"It just seems soooooooo much lonnnger!"
"Not better."
"I meant this in a good way - but it's too late to save it, isn't it?"
"Sorta."

Wednesday, May 18, 2016

no news

There is not much to report. Waiting is the worst. It's also the best, because nothing horrible is happening right at the moment, but there are always doctor's appointments to remind us of the horribleness that awaits.

Among things we probably knew but didn't want to dwell on:
* Skin grafts - ug
* 24-hour nursing care needed for weeks. Much of which I find myself ill-equipped to perform, but we'll do it. We'll figure it out.
* Waivers. Signing waivers about what you could wake up to is damn depressing. It's not like they ever say anything like, "By signing this waiver you agree to the fact that you may feel better than you've felt in years. In addition, you recognize that it is entirely possible you will kick cancer's @$$. Risks include but are not limited to: health, happiness and a solid dose of f-ing relief." Yeah, the waiver didn't say that.
* A year. If all goes well, therapy will last a minimum of one year. Somebody is frustrated by this. It's not me. No complaints about this one. Not a one. This part is easy.
* A six hour surgery. Six hours. I'm cool with this, because by all means - take your time guys - let's get this right. The time is not my concern exactly. My concern is how these guys are gonna get up at five am and stay focused for a full 25% of an ENTIRE DAY on one 8 centimeter patch on Rico's leg. Hell, I can't concentrate on binge watching Netflix for six hours straight without needing a taco run - or at the very least a bathroom break. Maybe we'll just have the whole thing catered into the O.R. like a really, REALLY overdue bar mitzvah - I'm thinking Taco John's.

Thanks for all of your continued love and support. From the cool bird feeder, to our family flip-flop necklaces, the food, and the patience. We appreciate it - even more than tacos.



- Posted using BlogPress from my iPad

Friday, May 13, 2016

showcase

Hey mom, I've got an idea, why don't you stop acting like a psycho now that showcase is over.
I'm so malnourished I can barely hold my pants up let alone this girl - seriously mom. It's been weeks. Can you go grocery shopping now?


How I tell my kids to behave during showcase week.
How I behave during showcase week.

Monday, May 9, 2016

rough week

Mostly I am too tired to write, but maybe I can manage a list.

1) Punk in the hospital once - but urgent care once too. Two bags of IV. Negative strep test. four days home from school. Viral - we think. I don't even know what to say about this.

2) Genetic testing for Rico. We needed him to go, but am truly terrified at what we will find out.

3) One of our teachers at the studio taught her last class today. She's heading for med school. She is truly everything I hoped I'd find in a teacher. We all cried about this one today.

4) A field trip for Yoda - to the dairy farm.

6) Our spring showcase for the studio is this weekend. I would be lying if I said we were ready. We're not, and furthermore, I know it is all my fault. I couldn't handle life for the past 5 months and it shows in my work. I wish it didn't. I do know that I gave them all I could. I also know that it was not nearly what I usually give. Ug.

5) But mother's day was nice. Italian food and a stop at the lake to feed fish and watch remote control boats.

6) Sleep. We all need sleep.

Thursday, May 5, 2016

today

If the rest of us could manage to stay out of the hospital it would be helpful.

One of us isn't helpful.

As I was chaperoning Kooka's field trip yesterday, Punk called from school - he was sick with a fever of 101. He woke up this morning with a sore throat but the fever was down. We kept him home from school, but also kept his chiropractic appointment since he'd been having some back pain.

He'd never been to the chiropractor before - none of us had. Not gonna lie - it looked a little bit like this:


But he said he felt ever so slightly better when we went home.

Until he passed out.
Twice.

And being the great parents we are - we only noticed once. He had to tell us about the other time. (In my defense, I wasn't home - but still - when your kid is laying face down on the carpet unconscious for any length of time, and you're unaware of it - Mom guilt kicks in).

The clinic was closed, but since I'd seen him have his spine snapped earlier, I thought it might be best to take him to the hospital.

We went.
Dr. S says his spine is still in tact. An bag of saline, an ultrasound and a blood culture later found him dehydrated with a low white cell count. Probably viral. Probably some kind of weird fainting disease we picked up from those wild island goats in Alabama last summer. Ug.